Apply to be a mentor for a rare disease patient group leader!

Become a mentor for a rare disease patient group leader who needs YOU and your skills!

This is your chance to give something back to a community that has given so much to those living with a rare disease.

Not sure what skills or advice you have to offer? Just being a sounding board for patient group leaders is invaluable. You don’t need to have a background in rare diseases! You simply need to encourage and guide patient group leaders as they identify the support they need, help them fully evaluate their options and empower them to uncover new information to help them reach their goals.

Never been a mentor before? Our programme is right for you.


• Grow your leadership skills
• Aid your career development
• Build out your network
• Establish your own personal coaching style
• Benefit from a free leadership training
• Meet with other mentors before the programme begins

If this isn’t enough, you’ll support the development of others and form meaningful, long-lasting relationships. Share your skills, network and contacts to help rare leaders from across the globe achieve their advocacy goals.

Key details

• Paired with a mentee for 12 months
• 1-month training period
• Virtual meetups throughout the year
• In-person welcome and closing Mentoring events
• Must submit applications by Monday, 20th February


• Business management
• Running a charity
• Communications
• Consultancy
• Coaching
• Life sciences
• Leadership
• Countless others!

NEW for 2023

1-month introductory training period

Have no fear! You’ll receive free training with a leadership coach to provide you with the skills needed to be a confident mentor. You’ll enjoy training on coaching and leadership skills, plus free training on mental health and resilience.

The training on coaching and leadership skills will cover how to:

• Approach your partnership and get into the “mentoring mindset”
• Structure conversations and encourage your mentee to use your skillset
• Identify your mentee’s needs
• Give feedback in a positive and constructive manner

Mentoring-specific space on the Resources Hub

You’ll gain access to an exclusive virtual space on Beacon’s Resources Hub! There you will find key information on the Mentoring programme, guides to help you navigate the scheme, resources and downloadable templates all designed to help you succeed.

Best of all, you’ll be able to view other mentees and mentors on the programme! You can not only see their skills and goals for the year, but also connect with them outside of your mentoring pair.

Access to Beacon’s Mentoring Facebook Group

Rather ask questions or give updates on your own time? Beacon has thought of that, too! You’ll gain access to Beacon’s new Mentoring Facebook Group to connect with your peers whenever suits your schedule.

Help patient group leaders get established, build their capacity and streamline their work, so they can increase their support services, implement new projects and increase their involvement in research. You have the skills and passion.

Apply to become a mentor today to help rare patient group leaders reach new heights!

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