2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven progress in rare disease research, policy, and innovation. Through inspiring keynotes, dynamic discussions and workshops, and interactive networking opportunities, we will reflect on the past 10 years of impact while shaping the future of rare disease collaboration. 

On Thursday 6 November 2025, we will gather at the Wellcome Genome Campus for our 7th RAREsummit – a flagship CamRARE event gathering 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities. CamRARE's RAREsummit25 welcomes and unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By reflecting on progress made, showcasing best practices and new developments, sharing knowledge and experience, and finding ways to work together, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain. 

Key themes include: 

• 5 year strategy launch Looking forward: The next decade of rare disease innovation 
• Where are they now? Impact stories from RAREsummit alumni 
• Research: RDRN Showcase: Patient-led research in action 
• Community: Patient Storytelling: The power of personal experience 
• Research: The future of genomics and rare diseases 
• Navigating relationships and mental wellbing with a rare disease 
• Women in Biotech & Leadership: Balancing Career, Family & Rare Disease 
• Advocacy Funding Futures: Patient Innovation Pitches Climate Change & Rare Disease: An Emerging Crisis? 

Why attend? Learn something new, be inspired, meet people, add value and collaborate. 

• Build your network with 300 biotechnology, pharma and startup leaders, innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled. 
• Meet, mingle and hold crucial discussions with potential partners from local and global arenas. 
• Take away practical strategies and fresh ideas. 
• Hear from and put questions to key opinion leaders from the patient, scientific, industry, medical, and policy sectors.